After almost 16 years of battling with Snyder-Robinson Syndrome, it is with heavy hearts that we announce the passing of our dear friend, Joey. 

Joey was such a bright light, and his legacy will continue to inspire resilience and strength throughout our entire community. 

Nathen, Joey's father, shared the following message: 

"To the wonderful Chive Nation, I wanted to thank you again for your generosity and give you an update. In February 2019, you were able to get my family a wheelchair-accessible van to make it easier to transport Joey and Greggy to doctors appointments, trips to Indy where their specialists are and to just transport the family around. Two weeks ago, Joey was admitted to Riley’s children's hospital in Indy with pneumonia. During the two weeks, he fought to recover, and the wonderful doctor and nurses at Riley’s did everything they could so he could come home. Yesterday my family was informed that there was nothing more that could be done for Joey, his right lung had been damaged too extensively, and they didn’t know if he would survive the surgery. In the early afternoon of May 12, 2023 my nephew passed away at 15, in another month and a half he would have been 16. This Friday, we will be celebrating his life and saying goodbye. My little buddy is no longer in pain but his life is as short as was impacted by so many." 

Our thoughts are with the Woodruff family during this difficult time.