Isabelle R.

Izzy gets outdoorsy

October 10, 2016

Izzy suffers from Kabuki syndrome, a rare genetic syndrome that has caused a number of developmental and physical problems. Once told that she will probably never leave her house and have any independence, Izzy now relishes going outdoors and playing with her brothers.

Izzy had a busy summer campign fishing swimming in rivers and lakes and trying to keep appointments to a minimum. According to mom, Heidi, "Izzy just enjoys being a kid. Now that school is started," She continued, "she is back in Girl Scouts. She still loves horseback riding (horse therapy) and swim lessons. We set a goal with her swim teacher to work towards swim team (Eli, Izzy's big brother is on swim team and Izzy wants to be too).  We went to this great event with CAST for kids, where fishermen donated their time and boats to take kids with special needs and their families out fishing, which Izzy and her brothers loved."  

You go Izzy. We know nothing will stop you.

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