Alexa

Alexa’s newest Accomplishment!

December 11, 2018

Alexa has been doing fairly well over this last year and continues to use the chair that she received from her Chive Charities Grant in 2015!

Alexa’s Mother, Ashleigh shared that "Alexa has been making great strides in therapy, which is a huge blessing!" All of Alexa’s hard work has paid off! She recently was able to sit up unassisted in a rocking chair for her Christmas, Alexa sat up for a whole minute, this is huge progress for Alexa!

Ashleigh shared that “Alexa's personality is starting to come back, which is huge! We’ve missed her smiles, squeals, and general troublemaking. She’s growing quickly and is getting quite heavy.  She’s 5, almost 6, which is crazy especially since her original prognosis gave her a life expectancy of 3.” 

Alexa did have a Vagus Nerve stimulator put in last year in October which sends regular mild pulses of electrical energy to the brain via the Vagus Nerve. It’s been just over a year since Alexa had the Vagus Nerve Stimulator put in and her seizures have generally become significantly better. Alexa’s seizures are now shorter and she doesn’t stop breathing as much, and she is more alert.