Xavier was recently featured in an article by the Baltimore Sun to raise awareness for Rare Disease Day, which was February 28th. Xavier turned 6 in march, 4 years past what they were told is the average life expectancy for his condition. Xavier is a fighter and his mother reports he has grown 4 inches and gained 4 lbs at his last doctor's appointment! 

Next up is possible surgery for his scoliosis, but for now he continues to grow and his family is overjoyed with his progress. KCCO and HAPPY BIRTHDAY, XAVIER!