"It was sudden and unexpected. Although we are devastated, we find solace in the fact that Xavier defied the odds and was able to live life to the fullest. He made us better people and had so, so many people who loved him. There are never words that can express enough thanks for what Chive Charities did for us. We would like to donate his items. His Chill-Out Chair will go to Maryland School for the Blind. Again thank you so much for being one of his champions and for sharing his story. Without you, many people would not know what's Schinzel-Giedion syndrome is.”

-Adrianne, Anthony, & Quinn

Xavier, it was you who was the champion, and you will continue to be an inspiration to us each and every day.