Merrick A.

Merrick progresses physically

January 18, 2017

“It’s working. IT’S WORKING!” Brandi was ecstatic to update us on all of the progress Merrick has made over the past year.  

Merrick has been accepted to a clinical trial that allows him to take a groundbreaking medication to help with his treatment for his diagnosis of SMA.  

“We have seen increased motor ability in his head and hands especially, but also in his legs and torso.  He is opening his eyes more, and wider.  His voice is getting louder and he has started moving his tongue, lips and jaw, again.”  These are all unimaginable feats for someone with such an aggressive neuromuscular disease.