Zoe is 4 and a half now, and just got her tibias re-rodded. They were growing out and had some complications of the bone starting to bow.
She's been on a new medicine called Zolondronate and is doing so well that she only needs infusions every 6 months now! She has a new wheelchair that is called a Tsunami Little Wave. Her kyphosis in her neck is still severe but she wears the neck brace 24/7 and that keeps her stable. She is allowed minimal breaks from it and of course she loves the time out of her brace. Her bone density isn't strong enough to do her spinal fusion and decompression yet so the family will have to wait a few more years for surgery.
Keep it up & KCCO, Zoe!