St Charles Herald Guide // August 21, 2015

Popular entertainment website inspires online community to donate $70K van to Luling boy battling rare disease

By Anna Thibodeaux - Herald Guide

A $70,000 handicap van and Comfee seat recently donated by Chive Charities came as enormous relief to Carissa Oxford of Luling, who is determined to stay the course on helping her son, Alex, deal with a rare debilitating disease.

The van, coming in September, has become vitally important in helping Alex’s family to keep this 83-pound boy mobile, as well as to make it possible for him to return to school up to three days a week.

The 12-year-old’s condition had worsened to where he can’t control his head movement enough to safely ride on the school bus anymore.

“I’m kind of lucky this is considered rare because I was able to get this assistance,” Oxford said of her son’s rare disease called adrenoleukodystrophy (X-ALD). “It’s a huge deal.”...

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