Capital Gazette // May 1, 2014

Family finds the tools needed to make a complicated life ‘normal’

By Phill Turner - Capital Gazette

Anthony Byrd showed off his family's new ride - a brand-new Toyota van.

"The difference is night and day," he said.

The van is retrofitted specifically for his son, Xavier, who is one of only three children in the United States to have a confirmed diagnosis of Schinzel-Giedion syndrome - a genetic disorder rendering him unable to sit up, talk or walk.

Last Friday, the van was delivered to Anthony and his wife Adrianne as part of a $55,000 gift from Chive Charities, an organization dedicated to funding people with rare medical conditions, disabilities and a wide variety of other needs.

"I don't know if 'thank you' are the right words," Anthony said. "It is overwhelming."...

Read the full article HERE