St Charles Herald Guide // January 29, 2016

Community, ‘Angels’ mourn Luling boy who succumbs to rare genetic disorder

By Anna Thibodeaux - St Charles Herald Guide

At a candlelight vigil held for Alex Oxford in Luling Friday, the family was astounded by the outpouring of love from people throughout the area who came to light a candle in memory of the once lively boy stricken by a rare genetic disorder called X-ALD.

They are called Alex’s Angels, a tireless group of people bringing their own light in the world who have been dedicated to helping the 12-year-old and his family deal with the devastating impact of an extremely rare, debilitating recessive genetic disorder called adrenoleukodystrophy or X-ALD.

By September of last year, the nonprofit organization, Chive Charities, became one of his angels by providing Alex with a $70,000 handicap van and Comfee seat that his mother, Carissa, considered a godsend.

Chive Charities Executive Director Brian Mercedes said they are deeply saddened by Alex’s passing.

“His story had such a profound impact on us that we knew we had to share it with the world,” Mercedes said. “Even though he is gone, his fight to educate the world about X-ALD lives on.  Our hope is that the strength, energy and purpose with which he lived inspires millions to make a difference. Alex thrived as a team player and he’ll always have a captain’s spot on the Chive Charities team.”....

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